How to include patient-public involvement in research

The ResCenPI members are affiliated with different types of organisations including hospitals and municipal health care settings, patient organisations, research centres and health knowledge and training centres. They have expertise advising, and collaborating with, people who are carrying out patient involvement intervention research, including patient-public involvement (PPI) representation in their research projects and co-designing health care with PPI representatives.

Find inspiration how to include patient-public involvment in the banner below.  

Inspiration

1. Mentorship, supervision, collaboration – invite a health services researcher or PPI expert to be part of your project, or career development mentor, to provide guidance throughout the project on the types of research design, methods and practices to ensure your study captures evidence of relevance to patient-focused outputs.

2. PPI group – ask people with experience of your health service pathway and the health problem or context of your study to be part of your PPI group. Their role will be to comment on their understanding and provide feedback on your research question, design, materials, and outputs at different stages through the research cycle. It may be you have different people in PPI groups at different points in your study. Some projects use small focus groups where all representatives comment together on materials, others ask PPI representatives to comment independently.

3. Steering group membership – ask a PPI representative to it on your project’s steering group and be involved in decision making about the research design and processes of your study. The PPI representative should be familiar with the health problem, and some of the associated management regimens or treatment options, such as a former patient and/or family member. Their role is to bring their perspective to feedback on the research process, the research burden of the project and validity of the findings.

4. Study design and methods – consider carrying out a study to elicit evidence about the patient experience of the health problem and services, for example analysis of routinely collected data to assess health care usage, systematic review of prior patient experience data, environmental scan of resources or policy, or qualitative survey eliciting patients’ experiences and decisions.

5. Affiliate with ResCenPI – ResCenPI has over 60 independent researchers with expertise across health and research settings on developing, implementing and evaluating patient-focused interventions who can advise and collaborate on projects, supervise and mentor people as part of their career progression, deliver training, signpost to other resources and provide feedback on research outputs (link to researcher).   

Other guidance and traning is available here.