Publications

 

Published research and other relevant research regarding patient involvement from October 2019 to now published by researchers with affiliation to ResCenPI. The list is sorted alphabetically and will be continously updated.

Publications

  • Beck A, Thaysen HV, Søgaard CH, Blaakær J, Seibæk L. From waiting to preparing: A qualitative feasibility study of cancer patients' perspectives on prehabilitation. European Journal for Person Centered Healthcare. 2019
  • Beck A, Thaysen HV, Søgaard CH, Blaakær J, Seibæk L. Investigating the experiences, thoughts, and feelings underlying and influencing prehabilitation among cancer patients: A qualitative perspective on the what, when, where, who, and why. Disability and Rehabilitation (2020).
  • Beck A, Thaysen HV, Søgaard CH, Blaakær J, Seibæk L. Prehabilitation in cancer surgery: An investigation of patients’ ability to prepare for major abdominal surgery. Scandinavian Journal of Caring Science. 2020.
  • Boje J, Madsen JK, Finderup J. Palliative care needs experienced by Danish patients with end-stage kidney disease. I: Journal of Renal Care, 31.08.2020.
  • Dyrehave C, Wejse C , Maindal HT, Rodkjaer L. HIV, an uninvited visitor - A qualitative study of cultural target barriers to retention in care and adherence among HIV-infected African migrants. EJCPH 2019 Vol 7 Issue 4 pp 623-629.
  • Fasterholdt I, Kidholm K, Laursen T, Rodkjaer L. Cost analysis of a mind–body intervention compared to usual hospital-based outpatient visits in HIV-infected individuals: a feasibility study. International Journal of Hospital-Based Health Technology Assessment 2020, 1:2-11
  • Finderup J, Crowley AE, Søndergaard H, Lomborg K. Involvement of patients with chronic kidney disease in research: A case study. I: Journal of Renal Care, 31.08.2020.
  • Finderup J, Jensen JD, Lomborg K. Evaluation of a shared decision-making intervention for dialysis choice at four Danish hospitals : A qualitative study of patient perspective. I: BMJ Open, Bind 9, Nr. 10, e029090, 01.10.2019.
  • Finderup J, Lomborg K, Jensen JD, Stacey D. Choice of dialysis modality: patients’ experiences and quality of decision after shared decision-making. I: BMC Nephrology, Bind 21, 330, 08.2020.
  • Finderup J, Søndergaard H, Lomborg K. Patientinvolvering i forskningen: Patientinvolvering - Når to plus to bliver fem.  I: Nyrenyt, Nr. 4, 12.2019.
  • Hansen KK, Jensen AL. Partnership in transition: Experiences of adolescents with Type 1 diabetes. International Diabetes Nursing. Published online: 04 Oct 2017.
  • Hole B, Selman L & Winterbottom A. A Report from the Report from the Dialysis—getting the right balance conference. Journal of Kidney Care. 2020: doi.org/10.12968/jokc.2020.5.2.87

  • Jensen AL, Lomborg K, Hjollund NH, Schougaard LMV, Olesen LB, Laurberg T, Hansen TK. DiabetesFlex ™ - the effect of PRO-based telehealth and user involvement in care management of patients with type 1 diabetes: Trial protocol for a non-inferiority randomised controlled study. Medical Research Archives.    
  • Jensen AL, Wind G, Langdahl BL, Lomborg K. The Impact of Multifaceted Osteoporosis Group Education on Patients' Decision-Making regarding Treatment Options and Lifestyle Changes. Journal of Osteoporosis, vol. 2018. Article ID 9703602, 10 pages, 2018. doi:10.1155/2018/9703602.
  • Mougaard-Frederiksen H, Seibæk L. Sundhedsprofessionelle perspektiver på patientinddragelse i det grøndlandske sundhedsvæsen. Grønlandsk Kultur og Samfundsforskning, Ilisimatusarfik 2020. 
  • Rodkjaer L, Laursen T, Seeberg K. I am a whole person, not a diagnose - A mind-body intervention to improve the mental well-being of HIV-infected individuals in Denmark. EJCPH 2019 Vol 7 Issue 4 pp 614-622.
  • Seibæk L, Handberg C, Beedholm K.  ''Well, if I don't show up and go through with the fertility treatment, I won't have a baby' Patient Involvement: Option or Condition? J Eval Clin Pract. 2020;1–8. 
  • Seibæk L. Thaysen HV, Lomborg, K. Patientperspektiver på organisering af specialiserede kirurgiske kræftbehandlingsforløb – implikationer for sygeplejepraksis. Fag og Forskning 2019.
  • Seibæk L. Patientinddragelse i klinisk hospitalspraksis. I Aagaard T, Hounsgaard L: Menneske - sundhed, samfund og kultur. Sundhedsarbejde og sundhedsforskning i Grønland 2020 (Peer-reviewed bidrag)
  •  Seibæk L. Patientinvolvering i grønlandsk hospitalspraksis - et igangværende forskningsprojekt. Ilisimatusaat (2020).
  • Skovlund, PC, Ravn, S, Seibaek, L, Lomborg K, Nielsen BK et al. The development of PROmunication: a training-tool for clinicians using patient-reported outcomes to promote patient-centred communication in clinical cancer settings. J Patient Rep Outcomes 4, 10 (2020). https://doi.org/10.1186/s41687-020-0174-6
  • Soendergaard A, Laursen T, Chesney M, Sodemann M, Rodkjaer L. Differences in coping self-efficacy, social relations and depression among  HIV-infected ethnic Danes and non-ethnic Danes in Denmark: a cross-sectional study. Journal of HIV/AIDS Prevention, Education and Behavioural Science 2019; 5(2): 156-163.
  • Sørensen CA, De Thurah A, Lisby M, Olesen C, Sørensen SB, Enemark U. "Cost–consequence analysis of self-administration of medication during hospitalization: a pragmatic randomized controlled trial in a Danish hospital setting" Therapeutic advances in Drug Safety 2020, Vol. 11:1-16. https://journals.sagepub.com/doi/full/10.1177/2042098620929921
  • Sørensen CA, Lisby M, Olesen C, Enemark U, Sørensen SB, De Thurah A. "Self-administration of medication: a pragmatic randomized controlled trial of the impact on dispensing errors, perceptions, and satisfaction". Therapeutic Advances in Drug Safety 2020, Vol. 11: 1–16: https://journals.sagepub.com/doi/full/10.1177/2042098620904616
  • Thaysen HV, Lomborg K, Seibæk L. Patienters behov og ønsker når højt specialiseret kirurgisk kræftbehandling ikke kan gennemføres som planlagt. Fokus på Kræft og Sygepleje (2020)
  • Thaysen HV, Lomborg K, Seibaek L: Possibilities and limits for patient involvement in comprehensive, high-risk cancer surgery. European Journal of Cancer Care. 2019
  • Therkildsen SB, Hansen LH, Jensen, LED, Finderup J. A Patient Decision Aid App for Patients With Chronic Kidney Disease: Questionnaire Study. I: JMIR Formative Research, Bind 3, nr. 4, e13786, 21.11.2019.
  • Winterbottom AE, Mooney A, Russon L, Hipkiss V, Williams R, Ziegler L, Finderup J, Bekker HL. A Dialysis and Conservative Care Decision Aid: Living with Kidney Disease. The Yorkshire Dialysis and Conservative Care Decision Aid (YoDCA) study booklet. Kidney Research Yorkshire (2020) https://kidneyresearchyorkshire.org.uk/home/yodca/

  • Winterbottom A, Mooney A, Russon L, Hipkiss V, Ziegler L, Williams R, Bekker HL. Critical Review of leaflets about conservative management used in UK renal; units. Journal of Renal Care. 2020: doi.org/10.1111/jorc.12327  
  • Winterbottom, AE, Mooney A, Russon L, Hipkiss V, Ziegler L, Williams R, Finderup J, Bekker HL. Kidney disease pathways, options and decisions: an environmental scan of international patient decision aids. I: Nephrology, Dialysis, Transplantation, 23.08.2020.
  • Zøylner IA, Kirkegaard P, Christiansen PM, Lomborg K. Patient involvement in the development of the Danish surgical breast cancer patient pathway – An action research project. Action Research.0(0):1476750320960819.
  • Zøylner IA, Lomborg K, Christiansen PM, Kirkegaard P. Surgical breast cancer patient pathway: Experiences of patients and relatives and their unmet needs. Health expectations : an international journal of public participation in health care and health policy. 2019;22(2):262-72.