MRC framework:

• Skivington K, Matthews L, Simpson SA, Craig P, Baird J, Blazeby JM, Boyd KA, Craig N, French DP, McIntosh E, Petticrew M, Rycroft-Malone J, White M, Moore L. A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance. BMJ. 2021 Sep 30; 374: n2061. doi: 10.1136/bmj.n2061
• O'Cathain A et al. Guidance on how to develop complex interventions to improve health and healthcare. BMJ Open. 2019; 9: e029954. doi:10.1136/bmjopen-2019-029954
• O’Cathain A et al. Taxonomy of approaches to developing interventions to improve health: a systematic methods overview. Pilot and Feasibility Studies. 2019; 5: 41. https://doi.org/10.1186/s40814-019-0425-6
• Maindal HT, Hansen ABG, Mygind A, Ryom K, Laugesen IG, Bro F. Klinisk implementering af komplekse interventioner. Ugeskr Læger. 2022; 184: V01220003

MIND-IT framework:

ResCenPI contact: h.l.bekker@leeds.ac.uk

• Brown E et al. Supportive Care Communication Strategies to Improve Cultural Competence in Shared Decision Making. Clin J Am Soc Nephrol. August 2016
• Breckenridge K et al. NDT Perspectives - How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting. Nephrol Dial Transplant. 2015; 30: 1605-1614
• Légaré F et al. Training health professionals in shared decision-making: An international environmental scan. Patient Education and Counselling. 2012; 88: 159-169 
• Légaré F et al. How can continuing professional development better promote shared decision-making? Perspectives from an international collaboration. Implementation Science. 2011; 6: 68
• Bekker HL. The loss of reason in patient decision aid research: do checklists affect the validity of informed choice interventions? Patient Education and Counseling. 2010; 78: 357-364
• Bekker HL. Chapter 7: Using decision making theory to inform clinical practice. In Elwyn G and Edwards A (eds). Shared Decision Making - Achieving Evidence-based patient choice. 2009. London: OUP
• Bryant L et al. The Lure of Patient Choice. British Journal of General Practice, 2007; 57: 822-826
• Bekker HL et al. Understanding why decision aids work: linking process and outcome. Patient Education and Counselling. 2003; 50: 323-329
• Bekker H et al. Informed decision making: an annotated bibliography and systematic review. 1999. UK: Health Technology Assessment Number 3. NHS R&D        

SHARED: A Patient Reported Measure of Shared Decision Making

ResCenPI contact: h.l.bekker@leeds.ac.uk  

• Bekker et al. Psychometric testing of SHARED A Patient Reported Measure of Shared Decision Making. 10^th International Shared Decision Making bi-annual conference, Quebec, CA (abstract 59 https://fourwaves-sots.s3.amazonaws.com/static/media/uploads/2019/06/28/isdm2019-oralsessionsbooklet-2019-06-28.pdf)
• Durand M-A et al. Can we routinely measure patient involvement in treatment decision making in chronic kidney care? A service evaluation in 27 renal units in the UK. Clinical Kidney Journal. 2016; 1-8
• Nye A, Clinical Lead for AQuA Shared Decision Making Programme. Your Health – Your Decision Evaluation & Output Report of the AQuA Workstream within the National Shared Decision Making Programme. Your-Health-Your-Decision-Evaluation-Report.pdf (aqua.nhs.uk)    

Standards for Universal Reporting of Patient Decision Aid Evaluation Studies: The Development of SUNDAE Checklist

ResCenPI contact: h.l.bekker@leeds.ac.uk  

• Sepucha K et al. Standards for UNiversal reporting of patient Decision Aid Evaluation studies: the development of SUNDAE Checklist. BMJ Qual Saf 2018; 27: 380-388. (accepted 13 August 2017)
• Sepucha K et al. Explanation and elaboration of the Standards for UNiversal reporting of patient Decision Aid Evaluations (SUNDAE) guidelines: rationale and examples of high quality reporting from patient decision aid evaluation reports. BMJ Quality & Safety. 2018; 27: 389-412. doi: 10.1136/bmjqs-2017-006985
• Bekker H, et al. Do personal stories make patient decision aids more effective: a critical review of evidence and theory? BMC Medical Informatics and Decision Making. 2013: 13 (Suppl2): S9
• Barratt A et al. IPDAS Collaboration Background Document Chapter C: Presenting Probabilities. Published online 2005 (http://ipdas.ohri.ca/resources.html)
• Bekker HL et al. Is anxiety an appropriate measure of decision aid effectiveness: a systematic review? Patient Education and Counselling. 2003; 50: 255-262