Department of Public Health

Research Centre for Patient Involvement

 Department of Public Health Research Centre for Patient Involvement Researchers Publications

Publications

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2024

  • Bro ML, Finderup J, Smilde R, Dreyer P, Gram B. Live music during haemodialysis: A multiple methods randomised controlled pilot study. J Ren Care. 2024 Mar; 50(1): 24-35. doi: 10.1111/jorc.12453.

2023

  • Alrø AB, Nedergaard HK, Svenningsen H, Jensen HI, Dreyer P. Patients' experiences of cognitive impairment following critical illness treated in an intensive care unit: A scoping review. J Clin Nurs. 2023 Aug; 32(15-16): 4374-4390. doi: 10.1111/jocn.16490.  
  • Andersen DR, Momsen AH, Pedersen P, Maimburg RD. Correction: Reflections on workplace adjustments for pregnant employees: a qualitative study of the experiences of pregnant employees and their managers. BMC Pregnancy Childbirth. 2023 Jan; 23(1): 2. doi: 10.1186/s12884-022-05333-3.
  • Astradsson A, Sørensen NT, Graversen AS, Nemeiko I, Bilgin-Freiert A, Stephansen LV, Einarsson HB, Valen Schougaard LM, Juhler M, Skovbo Hansen T. Hydroflex: Use of patient reported outcomes in a clinical setting among patients with hydrocephalus. World Neurosurg. 2023 Jan; 169: e67-e72. doi: 10.1016/j.wneu.2022.10.036. 
  • Duval Jensen J, Ledderer L, Beedholm K. How digital health documentation transforms professional practices in primary healthcare in Denmark: A WPR document analysis. Nurs Inq 2023 Jan; 30(1): e12499. doi: 10.1111/nin.12499. 
  • Fragoulis GE, Nikiphorou E, Dey M, Zhao SS, Courvoisier DS, Arnaud L, Atzeni F, Behrens GM, Bijlsma JW, Böhm P, Constantinou CA, Garcia-Diaz S, Kapetanovic MC, Lauper K, Luís M, Morel J, Nagy G, Poleverino E, van Rompay J, Sebastiani M, Strangfeld A, de Thurah A, Galloway J, Hyrich KL. 2022 EULAR recommendations for screening and prophylaxis of chronic and opportunistic infections in adults with autoimmune inflammatory rheumatic diseases. Ann Rheum Dis. 2023 Jun; 82(6):742-753. doi: 10.1136/ard-2022-223335. 
  • Gwinnutt JM, Wieczorek M, Balanescu A, Bischoff-Ferrari HA, Boonen A, Cavalli G, de Souza S, de Thurah A, Dorner TE, Moe RH, Putrik P, Rodríguez-Carrio J, Silva-Fernández L, Stamm T, Walker-Bone K, Welling J, Zlatković-Švenda MI, Guillemin F, Verstappen SMM. 2021 EULAR recommendations regarding lifestyle behaviours and work participation to prevent progression of rheumatic and musculoskeletal diseases. Ann Rheum Dis. 2023 Jan; 82(1): 48-56. doi: 10.1136/annrheumdis-2021-222020. 
  • Hjollund NHI, Larsen LP, de Thurah AL, Grove BE, Skuladottir H, Linnet H, Friis RB, Johnsen SP, May O, Jensen AL, Hansen TK, Taarnhøj GA, Tolstrup LK, Pappot H, Ivarsen P, Dørflinger L, Jessen A, Sørensen NT, Schougaard LMV, Team TA. Patient-reported outcome (PRO) measurements in chronic and malignant diseases: ten years' experience with PRO-algorithm-based patient-clinician interaction (telePRO) in AmbuFlex. Qual Life Res 2023 Apr; 32(4): 1053-1067. doi: 10.1007/s11136-022-03322-9.
  • Karlsen MW, Holm A, Kvande ME, Dreyer P, Tate JA, Heyn LG, Happ MB. Communication with mechanically ventilated patients in intensive care units: A concept analysis. J Adv Nurs 2023 Feb; 79(2): 563-580. doi: 10.1111/jan.15501. 
  • Lassen RB, Abild CB, Kristensen K, Kristensen LJ, Jensen AL. Patient-reported outcome instruments assessing the involvement of children and adolescents with type 1 diabetes in their treatment: a scoping review protocol. JBI Evid Synth 2023 Mar; 21(3): 609-616. doi: 10.11124/JBIES-22-00105. 
  • Lehmkuhl L, Olsen HT, Brønd JC, Rothmann MJ, Dreyer P, Jespersen E. Daily variation in physical activity during mechanical ventilation and stay in the Intensive Care Unit. Acta Anaesthesiol Scand. 2023 Apr; 67(4): 462-469. doi: 10.1111/aas.14195.
  • Mainz H, Odgaard L, Kristensen PK. Nursing representatives in clinical quality databases and the presence of nursing-sensitive indicators of fundamental nursing care. J Adv Nurs. 2023 Mar; 79(3): 1129-1138. doi: 10.1111/jan.15400. 
  • Skovsgaard CV, Kruse M, Hjollund N, Maribo T, de Thurah A. Cost-effectiveness of a telehealth intervention in rheumatoid arthritis: economic evaluation of the Telehealth in RA (TeRA) randomized controlled trial. Scand J Rheumatol. 2023 Mar; 52(2): 118-128. doi: 10.1080/03009742.2021.2008604. 
  • Søndergaard SF, Vestergaard EG, Andersen AB, Kolbaek R, Dahl M, Høgh A. How patients with diabetic foot ulcers experience telemedicine solutions: A scoping review. Int Wound J. 2023 May; 20(5): 1796-1810. doi: 10.1111/iwj.14026. 
  • Zøylner IA, Kirkegaard P, Christiansen PM, Lomborg K. Patient involvement in the development of the Danish surgical breast cancer patient pathway – An action research project. Action Research. 2023; 21(3): 284-309. doi: 10.1177/1476750320960819.

2022

  • Alrø AB, Klitnaes C, Dreyer P. Personal care assistants' lived experience of working in the home setting with children and adults on mechanical ventilation. Scand J Caring Sci. 2022 Jun; 36(2): 536-544. doi: 10.1111/scs.13056. 
  • Alrø AB, Nedergaard HK, Svenningsen H, Jensen HI, Dreyer P. Patients' experiences of cognitive impairment following critical illness: a scoping review protocol. BMJ Open. 2022 Apr; 12(4): e056156. doi: 10.1136/bmjopen-2021-056156
  • Andersen DR, Momsen AH, Pedersen P, Damkjær Maimburg R. Reflections on workplace adjustments for pregnant employees: a qualitative study of the experiences of pregnant employees and their managers. BMC Pregnancy Childbirth. 2022 Jun; 22(1): 456. doi: 10.1186/s12884-022-04749-1.
  • Barradell AC, Singh SJ, Houchen-Wolloff L, Robertson N, Bekker HL. A pulmonary rehabilitation shared decision-making intervention for patients living with COPD: PReSent: protocol for a feasibility study. ERJ Open Res. 2022 Jun; 8(2): 00645-2021. doi: 10.1183/23120541.00645-2021. 
  • Beck A, Thaysen HV, Soegaard CH, Blaakaer J, Seibaek L. Investigating the experiences, thoughts, and feelings underlying and influencing prehabilitation among cancer patients: a qualitative perspective on the what, when, where, who, and why. Disabil Rehabil. 2022 Jan; 44(2): 202-209. doi: 10.1080/09638288.2020.1762770. 
  • Benthien KS, Rasmussen K, Nielsen CP, Kidholm K, Grønkjær M, Toft U. Proactive Health Support: a randomised controlled trial of telephone-based self-management support for persons at risk of hospital admission. Age Ageing. 2022 Oct; 51(10): afac212. doi: 10.1093/ageing/afac212
  • Bro ML, Finderup J, Smilde R, Gram B, Dreyer P. Musical Breaks-Live Music in a Hemodialysis Setting-A Qualitative Study on Patient, Nurse, and Musician Perspectives. Healthcare (Basel). 2022 Aug; 10(9): 1637. doi: 10.3390/healthcare10091637
  • Brown GTF, Bekker HL, Young AL. Quality and efficacy of Multidisciplinary Team (MDT) quality assessment tools and discussion checklists: a systematic review. BMC Cancer. 2022 Mar; 22(1): 286. doi: 10.1186/s12885-022-09369-8
  • Buur LE, Finderup J, Søndergaard H, Kannegaard M, Madsen JK, Bekker HL. Mapping the empirical evidence on patient involvement interventions in patients with end-stage kidney disease making end-of-life care decisions: a scoping review protocol. JBI Evid Synth. 2022 Jun; 20(6): 1537-1544. doi: 10.11124/JBIES-21-00090
  • Buur LE, Finderup J, Søndergaard H, Kannegaard M, Madsen JK, Bekker HL. Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention. Pilot Feasibility Stud. 2022 Oct; 8(1): 226. doi: 10.1186/s40814-022-01184-z
  • Carstensen K, Kjeldsen AM, Lou S, Nielsen CP. The Danish health care quality programme: Creating change through the use of quality improvement collaboratives. Health Policy. 2022 Aug; 126(8): 749-754. doi: 10.1016/j.healthpol.2022.05.019. 
  • Dahl Steffensen K, Mølri Knudsen B, Finderup J, Willemann Würgler M, Olling K. Implementation of patient-centred care in Denmark: The way forward with shared decision-making. Z Evid Fortbild Qual Gesundhwes. 2022 Jun; 171: 36-41. doi: 10.1016/j.zefq.2022.04.005. 
  • Dalmia S, Boele F, Absolom K, Brunelli A, Franks K, Bekker HL, Pompili C. Shared Decision Making in Early-Stage Non-small Cell Lung Cancer: A Systematic Review. Ann Thorac Surg. 2022 Aug; 114(2): 581-590. doi: 10.1016/j.athoracsur.2021.01.046. 
  • de Thurah A, Bosch P, Marques A, Meissner Y, Mukhtyar CB, Knitza J, Najm A, Østerås N, Pelle T, Knudsen LR, Šmucrová H, Berenbaum F, Jani M, Geenen R, Krusche M, Pchelnikova P, de Souza S, Badreh S, Wiek D, Piantoni S, Gwinnutt JM, Duftner C, Canhão HM, Quartuccio L, Stoilov N, Prior Y, Bijlsma JW, Zabotti A, Stamm TA, Dejaco C. 2022 EULAR points to consider for remote care in rheumatic and musculoskeletal diseases. Ann Rheum Dis. 2022 Aug; 81(8): 1065-1071. doi: 10.1136/annrheumdis-2022-222341. 
  • de Thurah A, Marques A, de Souza S, Crowson CS, Myasoedova E. Future challenges in rheumatology - is telemedicine the solution? Ther Adv Musculoskelet Dis. 2022 Mar; 14: 1759720X221081638. doi: 10.1177/1759720X221081638. eCollection 2022
  • Drayton DJ, Howard S, Hammond C, Bekker HL, Russell DA, Howell SJ. Multidisciplinary Team Decisions in Management of Abdominal Aortic Aneurysm: A Service and Quality Evaluation. EJVES Vasc Forum. 2022 Jan; 54: 49-53. doi: 10.1016/j.ejvsvf.2022.01.005. 
  • Dyrehave C, Nielsen D, Wejse C, Maindal HT, Rodkjaer LO. Development of a Complex Intervention for Health Care Professionals' Care of Patients With African Background and HIV Infection Using the Behavior Change Wheel Method. J Transcult Nurs. 2022 May; 33(3): 259-267. doi: 10.1177/10436596221075989. 
  • Finderup J, Buur LE, Tscherning SC, Jensen AL, Kristensen AW, Petersen AP, Toft BS, Rasmussen GS, Skovlund P, Vedelø TW, Rodkjær LØ. Developing and testing guidance to support researchers engaging patient partners in health-related research. Res Involv Engagem. 2022 Aug; 8(1): 43. doi: 10.1186/s40900-022-00378-2
  • Frivold G, Ågård AS, Jensen HI, Åkerman E, Fossum M, Alfheim HB, Rasi M, Lind R. Family involvement in the intensive care unit in four Nordic countries. Nurs Crit Care. 2022 May; 27 (3): 450-459. doi: 10.1111/nicc.12702. 
  • Gwinnutt JM, Wieczorek M, Cavalli G, Balanescu A, Bischoff-Ferrari HA, Boonen A, de Souza S, de Thurah A, Dorner TE, Moe RH, Putrik P, Rodríguez-Carrio J, Silva-Fernández L, Stamm T, Walker-Bone K, Welling J, Zlatković-Švenda MI, Guillemin F, Verstappen SMM. Effects of physical exercise and body weight on disease-specific outcomes of people with rheumatic and musculoskeletal diseases (RMDs): systematic reviews and meta-analyses informing the 2021 EULAR recommendations for lifestyle improvements in people with RMDs. RMD Open. 2022 Mar; 8(1): e002168. doi: 10.1136/rmdopen-2021-002168
  • Gwinnutt JM, Wieczorek M, Rodríguez-Carrio J, Balanescu A, Bischoff-Ferrari HA, Boonen A, Cavalli G, de Souza S, de Thurah A, Dorner TE, Moe RH, Putrik P, Silva-Fernández L, Stamm T, Walker-Bone K, Welling J, Zlatković-Švenda M, Guillemin F, Verstappen SMM. Effects of diet on the outcomes of rheumatic and musculoskeletal diseases (RMDs): systematic review and meta-analyses informing the 2021 EULAR recommendations for lifestyle improvements in people with RMDs. RMD Open. 2022 Jun; 8(2): e002167. doi: 10.1136/rmdopen-2021-002167
  • Hansen CW, Esbensen BA, de Thurah A, Christensen R, de Wit M, Cromhout PF. Outcome measures in rheumatology applied in self-management interventions targeting people with inflammatory Arthritis A systematic review of outcome domains and measurement instruments. Semin Arthritis Rheum. 2022 Jun; 54: 151995. doi: 10.1016/j.semarthrit.2022.151995. 
  • Hansen J, Kirkegaard P, Folmann B, Bungum HF, Hammer A. "I feel reassured, but there is no guarantee." How do women with a future childbearing desire respond to active surveillance of cervical intraepithelial neoplasia grade 2? A qualitative study. Acta Obstet Gynecol Scand. 2022 Jun; 101(6): 616-623. doi: 10.1111/aogs.14354. 
  • Helgestad ADL, Larsen MB, Njor S, Tranberg M, Petersen LK, Andersen B. Three birds with one stone: a protocol for a randomised intervention study to increase participation in cervical and colorectal cancer screening among women attending breast cancer screening. BMJ Open. 2022 Sep; 12(9): e062824. doi: 10.1136/bmjopen-2022-062824
  • Holm A, Nikolajsen L, Dreyer P. A multicomponent intervention to optimise nurse-patient communication in the intensive care unit: A mixed-methods acceptability and feasibility study. Aust Crit Care. 2022 Nov; 35(6): 616-622. doi: 10.1016/j.aucc.2021.09.008. 
  • Holmen H, Singstad T, Ribu L, Jensen AL, Weldingh NM, Torbjørnsen A. Adapting a Patient-Reported Outcome Measure to Digital Outpatient Specialist Health Care Services for Type 1 Diabetes: User Involvement Study. JMIR Hum Factors. 2022 Nov; 9(4): e38678. doi: 10.2196/38678
  • Ibsen C, Schiøttz-Christensen B, Vinther Nielsen C, Hørder M, Maribo T. Assessment of functioning and disability in patients with low back pain - the low back pain assessment tool. Part 2: field-testing. Disabil Rehabil. 2022 Aug; 44(17): 4853-4861. doi: 10.1080/09638288.2021.1913649. 
  • Ibsen C, Schiøttz-Christensen B, Vinther Nielsen C, Hørder M, Schmidt AM, Maribo T. Assessment of functioning and disability in patients with low back pain - the low back pain assessment tool. Part 1: development. Disabil Rehabil. 2022 Aug; 44(17): 4841-4852. doi: 10.1080/09638288.2021.1913648. 
  • Iversen BR, Løkke A, Bregnballe V, Rodkjaer LØ. Does affiliation to a cross-sectorial lung team impact well-being, health-related quality of life, symptoms of anxiety and depression and patient involvement in patients with COPD? A randomised controlled trial. Scand J Caring Sci. 2022 Sep; 36(3): 730-741. doi: 10.1111/scs.13034. 
  • Jensen CS, Lisby M, Kirkegaard H, Loft MI. Signs and symptoms, apart from vital signs, that trigger nurses' concerns about deteriorating conditions in hospitalized paediatric patients: A scoping review. Nurs Open. 2022 Jan; 9(1): 57-65. doi: 10.1002/nop2.1105. 
  • Jones GL, Moss RH, Darby F, Mahmoodi N, Phillips B, Hughes J, Vogt KS, Greenfield DM, Brauten-Smith G, Gath J, Campbell T, Stark D, Velikova G, Snowden JA, Baskind E, Mascerenhas M, Yeomanson D, Skull J, Lane S, Bekker HL, Anderson RA. Cancer, Fertility and Me: Developing and Testing a Novel Fertility Preservation Patient Decision Aid to Support Women at Risk of Losing Their Fertility Because of Cancer Treatment. Front Oncol. 2022 Jun; 12: 896939. doi: 10.3389/fonc.2022.896939. 
  • Karlsen MW, Holm A, Kvande ME, Dreyer P, Tate JA, Heyn LG, Happ MB. Communication with mechanically ventilated patients in intensive care units: A concept analysis. J Adv Nurs 2023 Feb; 79(2): 563-580. doi: 10.1111/jan.15501. 
  • Kjeldsen LL, Dahlen HG, Maimburg RD. Expectations of the upcoming birth - A survey of women's self-efficacy and birth positions. Sex Reprod Healthc. 2022 Dec; 34: 100783. doi: 10.1016/j.srhc.2022.100783. 
  • Knudsen LR, Lomborg K, de Thurah A. Design and development of an e-learning patient education program for self-management support in patients with rheumatoid arthritis. PEC Innovation. 2022; 1: 100004. doi: 10.1016/j.pecinn.2021.100004
  • Kongensgaard R, Hansen TK, Krogseth M, Gregersen M. Impact of involvement of relatives in early home visits by a hospital-led geriatric team. Geriatr Nurs. 2022 May-Jun; 45: 64-68. doi: 10.1016/j.gerinurse.2022.02.027. 
  • Kristiansen AM, Lönnberg H, Christensen B, Bridal Løgstrup B, Eiskjær H, Terkildsen Maindal H, Elmose Mols R. Experiences with cross-sectional healthcare and treatment in heart failure patients: implications for medical education. Int J Med Educ. 2022 Dec; 13: 345-362. doi: 10.5116/ijme.6399.eef4.
  • Larsen MB, Hedelund M, Flander L, Andersen B. The impact of pre-notifications and reminders on participation in colorectal cancer screening - A randomised controlled trial. Prev Med. 2022 Nov; 164: 107229. doi: 10.1016/j.ypmed.2022.107229. 
  • Larsen MB, Stokholm R, Kirkegaard P, Laursen HS, Gabel P, Andersen B. Making decisions on your own: Self-administered decision aids about colorectal cancer screening - A systematic review and meta-analyses. Patient Educ Couns. 2022 Mar; 105(3): 534-546. doi: 10.1016/j.pec.2021.07.035. 
  • Laurberg T, Schougaard LMV, Hjollund NHI, Lomborg KE, Hansen TK, Jensen AL. Randomized controlled study to evaluate the impact of flexible patient-controlled visits in people with type 1 diabetes: The DiabetesFlex Trial. Diabet Med. 2022 May; 39(5): e14791. doi: 10.1111/dme.14791. 
  • Liposits G, Schougaard LMV, Skuladottir H. Geriatric screening in older adults with cancer using electronic patient-reported outcome measures (PROMs) - A feasible approach in a resource-limited setting. J Geriatr Oncol. 2022 Jul; 13(6): 880-884. doi: 10.1016/j.jgo.2022.03.003. 
  • Lou S, Dahlen HG, Gefke Hansen S, Ørneborg Rodkjær L, Damkjær Maimburg R. Why freebirth in a maternity system with free midwifery care? A qualitative study of Danish women's motivations and preparations for freebirth. Sex Reprod Healthc. 2022 Dec; 34: 100789. doi: 10.1016/j.srhc.2022.100789. 
  • Lund H, Tang L, Poulsen I, la Cour K, Bjerrum M, Nielsen CV, Maribo T. Lack of systematicity in research prioritisation processes - a scoping review of evidence syntheses. Syst Rev. 2022 Dec; 11(1): 277. doi: 10.1186/s13643-022-02149-2.
  • Maindal HT, Hansen ABG, Mygind A, Ryom K, Laugesen IG, Bro F. Klinisk implementering af komplekse interventioner. Ugeskr Læger 2022; 184: V01220003.
  • Mainz H, Frandsen L, Lind M, Fauno P, Lomborg K. Development and Test of a Decision Aid for Shared Decision Making in Patients with Anterior Cruciate Ligament Injury. MDM Policy Pract. 2022 Mar; 7(1): 23814683221081434. doi: 10.1177/23814683221081434. 
  • Marques A, Bosch P, de Thurah A, Meissner Y, Falzon L, Mukhtyar C, Bijlsma JW, Dejaco C, Stamm TA; EULAR task force on Points to Consider for the for remote care in rheumatic and musculoskeletal diseases. Effectiveness of remote care interventions: a systematic review informing the 2022 EULAR Points to Consider for remote care in rheumatic and musculoskeletal diseases. RMD Open. 2022 May; 8(1): e002290. doi: 10.1136/rmdopen-2022-002290
  • Meldgaard M, Jensen AL, Johansen AD, Maimburg RD, Maindal HT. Health literacy and related behaviour among pregnant women with obesity: a qualitative interpretive description study. BMC Pregnancy Childbirth. 2022 Sep; 22(1): 712. doi: 10.1186/s12884-022-05023-0.
  • Meldgaard M, Maimburg RD, Damm MF, Aaby A, Peeters A, Maindal HT. The Health Literacy in Pregnancy (HeLP) Program Study Protocol: Development of an Antenatal Care Intervention Using the Ophelia Process. Int J Environ Res Public Health. 2022 Apr; 19(8): 4449. doi: 10.3390/ijerph19084449
  • Momsen AH, Ørtenblad L, Maribo T. Effective rehabilitation interventions and participation among people with multiple sclerosis: An overview of reviews. Ann Phys Rehabil Med. 2022 Jan; 65(1): 101529. doi: 10.1016/j.rehab.2021.101529. 
  • Møller LA, Martinsen B, Werlauff U, Dreyer P. Ageing with neuromuscular disease: getting lost in transitions. Disabil Rehabil. 2022 Aug; 44(16): 4311-4318. doi: 10.1080/09638288.2021.1902577. 
  • Møller LA, Martinsen B, Werlauf U, Dreyer P. Ageing with neuromuscular disease: Implications for a lifeworld-led care through a humanising approach.  J Clin Nurs. 2022 Sep; 31(17-18): 2507-2517. doi: 10.1111/jocn.16065. 
  • Møller LA, Martinsen B, Werlauff U, Dreyer P. Participation amongst people ageing with neuromuscular disease: a qualitative study of lived experiences. Nurs Open. 2022 Nov; 9(6): 2675-2682. doi: 10.1002/nop2.966. 
  • Nielsen MH, Rasmussen TB, Wagner MK, Bekker D, Bruvik SM, Ekholm O, Berg SK, Christensen AV, Mols RE, Thorup CB, Thrysoee L, Borregaard B. Return to work and everyday life following out-of-hospital cardiac arrest. Results from the national survey, DenHeart. Heart Lung. 2023 Mar; 58: 54-61. doi: 10.1016/j.hrtlng.2022.11.004. 
  • Nissen NK, Aarhus R, Ørtenblad L.  Dynamics of a specialized and complex health care system: Exploring general practitioners' management of multimorbidity. Chronic Illn. 2022 Mar; 18(1): 155-168. doi: 10.1177/1742395320928403. 
  • Pedersen CG, Høstrup LH, Gadager BB, Nielsen CV, Maribo T, Madsen LS. Understanding healthcare providers' experiences with video recording of patient consultations. Prim Health Care Res Dev. 2022 Jun; 23: e35. doi: 10.1017/S1463423622000214 
  • Pini S, Bekker HL, Bennett M, Ziegler L. A Structured Intervention to Support Early Palliative Care Conversations for Oncology Patients - A Qualitative Feasibility Study. Clin Oncol (R Coll Radiol). 2022 Dec; 34(12): e515-e522. doi: 10.1016/j.clon.2022.05.012. 
  • Rasmussen AA, Fridlund B, Nielsen K, Rasmussen TB, Thrysoee L, Borregaard B, Thorup CB, Berg SK, Mols RE. Gender differences in patient-reported outcomes in patients with acute myocardial infarction. Eur J Cardiovasc Nurs. 2022 Nov; 21(8): 772-781. doi: 10.1093/eurjcn/zvac022
  • Rasmussen B, Holton S, Wynter K, Phillips DJ, David JL, Rothmann MJ, Skjoeth MM, Wijk H, Frederiksen K, Ahlstrom L, Anderson JE, Harris R, Conolly A, Kent B, Maben J. We're on mute! Exclusion of nurses' voices in national decisions and responses to COVID-19: An international perspective. J Adv Nurs. 2022 Jul; 78(7): e87-e90. doi: 10.1111/jan.15236. 
  • Ritschl V, Stamm TA, Aletaha D, Bijlsma JWJ, Böhm P, Dragoi RG, Dures E, Estévez-López F, Gossec L, Iagnocco A, Marques A, Moholt E, Nudel M, van den Bemt BJF, Viktil K, Voshaar M, de Thurah A, Carmona L. 2020 EULAR points to consider for the prevention, screening, assessment and management of non-adherence to treatment in people with rheumatic and musculoskeletal diseases for use in clinical practice. Ann Rheum Dis. 2021 Jun; 80(6): 707-713. doi: 10.1136/annrheumdis-2020-218986. 
  • Rodkjær L, Jeppesen M, Schougaard L. Management of Cystic Fibrosis during COVID-19: Patient Reported Outcomes based remote follow-up among CF patients in Denmark - A feasibility study. J Cyst Fibros. 2022 Mar; 21(2): e106-e112. doi: 10.1016/j.jcf.2021.10.010. 
  • Rørbech JT, Jensen CS, Dreyer P, Herholdt-Lomholdt SM. Beyond objective measurements: Danish nurses' identification of hospitalized pediatric patients at risk of clinical deterioration - A qualitative study. J Pediatr Nurs. 2022 Sep-Oct; 66: e67-e73. doi: 10.1016/j.pedn.2022.05.016. 
  • Rud CL, Baunwall SMD, Bager P, Dahlerup JF, Wilkens TL, Tøttrup A, Lal S, Hvas CL. Patient-Reported Outcomes and Health-Related Quality of Life in People Living With Ileostomies: A Population-Based, Cross-Sectional Study. Dis Colon Rectum. 2022 Aug; 65(8): 1042-1051. doi: 10.1097/DCR.0000000000002100. .
  • Schjødt K, Erlang AS, Starup-Linde J, Jensen AL. Older hospitalised patients' experience of involvement in discharge planning. Scand J Caring Sci. 2022 Mar; 36(1): 192-202. doi: 10.1111/scs.12977.
  • Schmidt AM, Garval M, Gromov K, Holm C, Larsen JR, Runge C, Vase M, Mikkelsen LR, Mortensen L, Skou ST. Feasibility, safety, and patient-reported outcomes 90 days after same-day total knee arthroplasty: a matched cohort study. Acta Orthop. 2022 Jun; 93: 509-518. doi: 10.2340/17453674.2022.2807
  • Schougaard LMV, Laurberg T, Lomborg K, Hansen TK, Hjollund NH, Jensen AL. Test-retest reliability and measurement error of the WHO-5 Well-being Index and the Problem Areas in Diabetes questionnaire (PAID) used in telehealth among patients with type 1 diabetes. J Patient Rep Outcomes. 2022 Sep 23; 6(1): 99. doi: 10.1186/s41687-022-00505-3
  • Steensgaard R, Kolbaek R, Angel S. Nursing staff facilitate patient participation by championing the patient's perspective: An action research study in spinal cord injury rehabilitation. Health Expect. 2022 Oct; 25(5): 2525-2533. doi: 10.1111/hex.13574. 
  • Søndergaard SF, Beedholm K, Kolbæk R, Frederiksen K. Patients' and Nurses' Experiences of All Single-Room Hospital Accommodation: A Scoping Review. HERD. 2022 Jan; 15(1): 292-314. doi: 10.1177/19375867211047548. 
  • Terkildsen MD, Kennedy HG, Jentz C, Sørensen LU. Online video games and patient-staff power relations. A qualitative study of care and custody in forensic psychiatry.  J Psychiatr Ment Health Nurs. 2022 Jun; 29(3): 493-503. doi: 10.1111/jpm.12813. E
  • Thorborg T, Ivarsen P, Lacroise DJ, Päevatalu AO, Breer CB, Finderup J. Patients with ANCA-associated vasculitis' experiences of informational needs: A qualitative interview study.  J Ren Care. 2022 Jun; 48(2): 84-92. doi: 10.1111/jorc.12412. 
  • Toft BS, Galvin K, Nielsen CV, Uhrenfeldt L. Being with others during physical activity: experiences of well-being among adults with severe obesity. Physiother Theory Pract. 2022 Aug; 38(8): 1003-1015. doi: 10.1080/09593985.2020.1815262. 
  • Toft BS, Hörberg U, Rasmussen B. The ups and downs of lifestyle modification: An existential journey among persons with severe obesity. Scand J Caring Sci. 2022 Mar; 36(1): 265-274. doi: 10.1111/scs.12985. 
  • Toft BS, Rodkjaer L, Andersen AB, de Thurah A, Nielsen B, Nielsen CP, Hørlück JT, Kallestrup L, Schougaard LMV, Ludvigsen MS, Hoybye MT, Ellegaard T, Bekker H. Measures used to assess interventions for increasing patient involvement in Danish healthcare setting: a rapid review. BMJ Open. 2022 Dec;12(12):e064067. doi: 10.1136/bmjopen-2022-064067.
  • Tuesen LD, Bülow HH, Ågård AS, Strøm SM, Fromme E, Jensen HI. Discussing patient preferences for levels of life-sustaining treatment: development and pilot testing of a Danish POLST form. BMC Palliat Care. 2022 Jan; 21(1): 9. doi: 10.1186/s12904-021-00892-2.
  • Tuesen LD, Ågård AS, Bülow HH, Fromme EK, Jensen HI. Decision-making conversations for life-sustaining treatment with seriously ill patients using a Danish version of the US POLST: a qualitative study of patient and physician experiences. Scand J Prim Health Care. 2022 Mar; 40(1): 57-66. doi: 10.1080/02813432.2022.2036481. 
  • Vester LB, Holm A, Dreyer P. Patients' and relatives' experiences of post-ICU everyday life: A qualitative study. Nurs Crit Care. 2022 May; 27(3): 392-400. doi: 10.1111/nicc.12682. 
  • Wieczorek M, Gwinnutt JM, Ransay-Colle M, Balanescu A, Bischoff-Ferrari H, Boonen A, Cavalli G, de Souza S, de Thurah A, Dorner TE, Moe RH, Putrik P, Rodríguez-Carrio J, Silva-Fernández L, Stamm TA, Walker-Bone K, Welling J, Zlatkovic-Svenda M, Verstappen SM, Guillemin F. Smoking, alcohol consumption and disease-specific outcomes in rheumatic and musculoskeletal diseases (RMDs): systematic reviews informing the 2021 EULAR recommendations for lifestyle improvements in people with RMDs. RMD Open. 2022 Mar; 8(1): e002170. doi: 10.1136/rmdopen-2021-002170
  • Wieczorek M, Verstappen SM, Putrik P, Gwinnutt JM, Balanescu A, Bischoff-Ferrari HA, Boonen A, Cavalli G, de Souza S, de Thurah A, Dorner TE, Moe RH, Rodríguez-Carrio J, Silva-Fernández L, Stamm T, Walker-Bone K, Welling J, Zlatković-Švenda M, Guillemin F. Association of vocational interventions and work-related factors with disease and work outcomes in people with RMDs: A systematic review. Semin Arthritis Rheum. 2022 Nov; 58: 152135. doi: 10.1016/j.semarthrit.2022.152135. 
  • Zhao J, Jull J, Finderup J, Smith M, Kienlin SM, Rahn AC, Dunn S, Aoki Y, Brown L, Harvey G, Stacey D. Understanding how and under what circumstances decision coaching works for people making healthcare decisions: a realist review. BMC Med Inform Decis Mak. 2022 Oct; 22(1): 265. doi: 10.1186/s12911-022-02007-0

2021

  • Alrø AB, Høyer L, Dreyer P. A Child with Home Mechanical Ventilation Affects the Family: A Danish Study shows that well Siblings may become Shadow Children. J Pediatr Nurs. 2021 Jul-Aug; 59: 19-24. doi: 10.1016/j.pedn.2020.12.013
  • Badre-Esfahani S, Petersen LK, Tatari CR, Blaakær J, Andersen B, Seibæk L. Perceptions of cervical cancer prevention among a group of ethnic minority women in Denmark - A qualitative study. PLoS One. 2021 Jun; 16(6): e0250816. doi: 10.1371/journal.pone.0250816
  • Bager P. Patient or diagnosis-focused care - room and need for improvement. Nat Rev Gastroenterol Hepatol. 2021 Nov; 18(11): 745. doi: 10.1038/s41575-021-00525-2    
  • Beck A, Vind Thaysen H, Hasselholt Soegaard C, Blaakaer J, Seibaek L. Prehabilitation in cancer care: patients' ability to prepare for major abdominal surgery. Scand J Caring Sci. 2021 Mar; 35(1): 143-155. doi: 10.1111/scs.12828   
  • Beck A, Vind Thaysen H, Hasselholt Soegaard C, Blaakaer J, Seibaek L. What matters to you? An investigation of patients' perspectives on and acceptability of prehabilitation in major cancer surgery. Eur J Cancer Care (Engl). 2021 Nov; 30(6): e13475. doi: 10.1111/ecc.13475
  • Bjerregaard Alrø A, Klitnaes C, Dahl Rossau C, Dreyer P. Living as a family with a child on home mechanical ventilation and personal care assistants - A burdensome impact on family life. Nurs Open. 2021 Nov; 8(6): 3340-3348. doi: 10.1002/nop2.879    
  • Boje J, Madsen JK, Finderup J. Palliative care needs experienced by Danish patients with end-stage kidney disease. J Ren Care. 2021 Sep; 47(3): 169-183. doi: 10.1111/jorc.12347 
  • Bøgdal J, Schmidt AM, Nielsen KØ, Handberg C. An Integrated Multidisciplinary Rehabilitation Program Experienced by Patients with Chronic Low Back Pain. Clin Med Res. 2021 Dec; 19(4): 192-202. doi: 10.3121/cmr.2021.1602.
  • Erlang AS, Schjødt K, Linde JKS, Jensen AL. An observational study of older patients' experiences of involvement in discharge planning. Geriatr Nurs. 2021 Jul-Aug; 42(4): 855-862. doi: 10.1016/j.gerinurse.2021.04.002  
  • Faymonville L, Schmidt AM, Handberg C. Implementation of a multidisciplinary rehabilitation program for patients with chronic low back pain-experiences and perspectives of rehabilitation team members. J Eval Clin Pract. 2021 Apr; 27(2): 377-384. doi: 10.1111/jep.13441  
  • Finderup J. Shared decision making - The cornerstone in person-centred care. J Ren Care. 2021 Sep; 47(3): 144-145. doi: 10.1111/jorc.12392   
  • Finderup J, Crowley A, Søndergaard H, Lomborg K. Involvement of patients with chronic kidney disease in research: A case study. J Ren Care. 2021 Jun; 47(2): 73-86. doi: 10.1111/jorc.12346
  • Finderup J, Lomborg K, Jensen JD, Stacey D. Choice of dialysis modality: patients' experiences and quality of decision after shared decision-making. BMC Nephrol. 2020 Aug; 21(1): 330. doi: 10.1186/s12882-020-01956-w
  • Finderup J & Stacey D. Quality patient decision aids to support healthcare decision making. Medical Writing. September 2021; 30(3): 38-44.
  • Fischer S, Seibaek L. Patient perspectives on relatives and significant others in cancer care: An interview study. Eur J Oncol Nurs. 2021 Jun; 52: 101964. doi: 10.1016/j.ejon.2021.101964
  • Grove BE, Schougaard LMV, Ivarsen PR, Kyte D, Hjollund NH, de Thurah A. Patient-reported outcome measures for clinical decision-making in outpatient follow-up: validity and reliability of a renal disease questionnaire. J Patient Rep Outcomes. 2021 Oct; 5(1): 107. doi: 10.1186/s41687-021-00384-0
  • Gültzow T, Hoving C, Smit ES, Bekker HL. Integrating behaviour change interventions and patient decision aids: How to accomplish synergistic effects? Patient Educ Couns. 2021 Dec; 104(12): 3104-3108. doi: 10.1016/j.pec.2021.04.007. 
  • Hansen TK, Jensen AL, Damsgaard EM, Rubak TMM, Jensen MEJ, Gregersen M. Involving frail older patients in identifying outcome measures for transitional care – a feasibility study. Research Involvement and Engagement. 2021; 7: 36. doi: 10.1186/s40900-021-00288-9
  • Hansen TK, Pedersen LH, Shahla S, Damsgaard EM, Bruun JM, Gregersen M. Effects of a new early municipality-based versus a geriatric team-based transitional care intervention on readmission and mortality among frail older patients - a randomised controlled trial. Arch Gerontol Geriatr. 2021 Nov-Dec; 97: 104511. doi: 10.1016/j.archger.2021.104511   
  • Hedeager Momsen AM, Høtoft D, Ørtenblad L, Friis Lauszus F, Krogh RHA, Lynggaard V, Juel Christiansen J, Terkildsen Maindal H, Vinther Nielsen C. Diabetes prevention interventions for women after gestational diabetes mellitus: an overview of reviews. Endocrinol Diabetes Metab. 2021 Feb; 4(3): e00230. doi: 10.1002/edm2.230
  • Holm A, Karlsson V, Dreyer P. Nurses' experiences of serving as a communication guide and supporting the implementation of a communication intervention in the intensive care unit. Int J Qual Stud Health Well-being. 2021 Dec; 16(1): 1971598. doi: 10.1080/17482631.2021.1971598   
  • Holm A, Nikolajsen L, Dreyer P. A multicomponent intervention to optimise nurse-patient communication in the intensive care unit: A mixed-methods acceptability and feasibility study. Aust Crit Care. 2021 Nov; 18: S1036-7314(21)00144-2. doi: 10.1016/j.aucc.2021.09.008
  • Hovdenak Jakobsen I, Vind Thaysen H, Laurberg S, Johansen C, Juul T; FURCA Steering Group. Patient-led follow-up reduces outpatient doctor visits and improves patient satisfaction. One-year analysis of secondary outcomes in the randomised trial Follow-Up after Rectal Cancer (FURCA). Acta Oncol. 2021 Sep; 60(9): 1130-1139. doi: 10.1080/0284186X.2021.1950924
  • Ibsen C, Maribo T, Nielsen CV, Hørder M, Schiøttz-Christensen B. ICF-Based Assessment of Functioning in Daily Clinical Practice. A Promising Direction Toward Patient-Centred Care in Patients With Low Back Pain. Front Rehabil Sci. 2021 Oct; 2: 732594. doi: 10.3389/fresc.2021.732594. 
  • Iversen BR, Rodkjaer LØ, Bregnballe V, Løkke A. Clinical Outcome of a Cross-Sectorial Lung Team Treating Patients with COPD at High Risk of Exacerbation: A Randomized Controlled Trial. COPD. 2021 Apr; 18(2): 201-209. doi: 10.1080/15412555.2021.1898577 
  • Iversen BR, Rodkjær LØ, Bregnballe V, Løkke A. The impact on severe exacerbations of establishing a cross-sectorial lung team for patients with COPD at high risk of exacerbating: a pilot study.  European Clinical Respiratory Journal. 2021 Feb; 8(1): 1882029. doi: 10.1080/20018525.2021.1882029. 
  • Jensen PS,  Specht K,  Mainz H. Sleep quality among orthopaedic patients in Denmark - A nationwide cross-sectional study. Int J Orthop Trauma Nurs. 2021 Feb; 40: 100812. doi: 10.1016/j.ijotn.2020.100812
  • Jull J, Köpke S, Smith M, Carley M, Finderup J, Rahn AC, Boland L, Dunn S, Dwyer AA, Kasper J, Kienlin SM, Légaré F, Lewis KB, Lyddiatt A, Rutherford C, Zhao J, Rader T, Graham ID, Stacey D. Decision coaching for people making healthcare decisions. Cochrane Database Syst Rev. 2021 Nov 8; 11: CD013385. doi: 10.1002/14651858.CD013385.pub2
  • Kirkegaard P, Edwards A, Andersen B. Balancing risks: Qualitative study of attitudes, motivations and intentions about attending for mammography during the COVID-19 pandemic. Scand J Public Health. 2021 Nov; 49(7): 700-706. doi: 10.1177/14034948211002648 
  • Knudsen LR, Lomborg K, Ndosi M. et al. The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study – protocol for a pragmatic randomised controlled trial. BMC Rheumatol. 2021; 5(1): 57. doi: 10.1186/s41927-021-00226-y
  • Larsen MB, Bachmann HH, Søborg B, Laurberg T, Emmertsen KJ, Laurberg S, Andersen B. Prevalence of self-reported abdominal symptoms among 50-74-years-old men and women eligible for colorectal cancer screening - a cross-sectional study. BMC Cancer. 2021 Aug 10; 21(1): 910. doi: 10.1186/s12885-021-08657-z
  • Larsen MB, Stokholm R, Kirkegaard P, Laursen HS, Gabel P, Andersen B. Making decisions on your own. Self-administered decision aids about colorectal cancer screening - A systematic review and meta-analyses. Patient Educ Couns. 2021 Jul; 24: S0738-3991(21)00495-X. doi: 10.1016/j.pec.2021.07.035 
  • Lernevall LST, Moi AL, Gjengedal E, Dreyer P. Parents' lived experiences of parental needs for support at a burn centre. Int J Qual Stud Health Well-being. 2021 Dec; 16(1): 1855749. doi: 10.1080/17482631.2020.1855749 
  • Lumb AB, Latchford GJ, Bekker HL, Hetmanski AR, Thomas CR, Schofield CE. Investigating the causes of patient anxiety at induction of anaesthesia: A mixed methods study. J Perioper Pract. 2021 Jul-Aug; 31(7-8): 246-254. doi: 10.1177/1750458920936933  
  • Pini S, Hackett J, Taylor S, Bekker HL, Kite S, Bennett MI, Ziegler L. Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study. Eur J Cancer Care (Engl). 2021 Jan; 30(1): e13340. doi: 10.1111/ecc.13340
  • Poulsen NR, Schougaard LMV, Søvsø MB, Leutscher PDC, Pedersen MK. Patient-reported outcome measures in the emergency department: a scoping review protocol. JBI Evid Synth. 2021 May 28; 19(11): 3102-3112. doi: 10.11124/JBIES-20-00532
  • Rahn AC, Jull J, Boland L, Finderup J, Loiselle MC, Smith M, Köpke S, Stacey D. Guidance and/or Decision Coaching with Patient Decision Aids: Scoping Reviews to Inform the International Patient Decision Aid Standards (IPDAS). Med Decis Making. 2021 Oct; 41(7): 938-953. doi: 10.1177/0272989X21997330    
  • Raunsbæk Knudsen L, Lomborg K, Ndosi M, Hauge EM, de Thurah A. The effectiveness of e-learning in patient education delivered to patients with rheumatoid arthritis: The WebRA study-protocol for a pragmatic randomised controlled trial. BMC Rheumatol. 2021 Dec 20; 5(1): 57. doi: 10.1186/s41927-021-00226-y.    
  • Ravn S, Thaysen HV, Verwaal VJ; HIPEC ePRO collaborative at Aarhus University Hospital, Seibæk L, Iversen LH. Cancer follow-up supported by patient-reported outcomes in patients undergoing intended curative complex surgery for advanced cancer. J Patient Rep Outcomes. 2021 Nov; 8: 5(1): 120. doi: 10.1186/s41687-021-00391-1
  • Seibæk L. Patient involvement in Greenland hospital-care: A qualitative study of the patient perspective. Int J Circumpolar Health. 2021 Dec; 80(1): 1971377. doi: 10.1080/22423982.2021.1971377     
  • Seibaek L, Handberg C, Beedholm K. 'Well, if I don't show up and go through with the fertility treatment, I won't have a baby'; Patient involvement in clinical practice: Option or condition? J Eval Clin Pract. 2021 Apr; 27(2): 256-263. doi: 10.1111/jep.13435 
  • Shaffer VA, Brodney S, Gavaruzzi T, Zisman-Ilani Y, Munro S, Smith SK, Thomas E, Valentine KD, Bekker HL. Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards. Med Decis Making. 2021 Oct; 41(7): 897-906. doi: 10.1177/0272989X211011100   
  • Skovlund PC, Vind Thaysen H, Schmidt H, Alsner J, Hjollund NH, Lomborg K, Nielsen BK. Effect of patient-reported outcomes as a dialogue-based tool in cancer consultations on patient self-management and health-related quality of life: a clinical, controlled trial. Acta Oncol. 2021 Dec; 60(12): 1668-1677. doi: 10.1080/0284186X.2021.1962972. 
  • Stacey D, Volk RJ (for the IPDAS Evidence Update Leads: (Hilary Bekker, Karina Dahl Steffensen, Tammy C. Hoffmann, Kirsten McCaffery, Rachel Thompson, Richard Thomson, Lyndal Trevena, Trudy van der Weijden, and Holly Witteman). The International Patient Decision Aid Standards (IPDAS) Collaboration: Evidence Update 2.0. Med Decis Making. 2021 October 1; 41(7): 729-733. doi: 10.1177/0272989X211035681
  • Steensgaard R, Kolbaek R, Jensen JB, Angel S. Action research as a catalyst for change: Empowered nurses facilitating patient participation in rehabilitation. Nurs Inq. 2021 Jan; 28(1): e12370. doi: 10.1111/nin.12370
  • Tatari CR, Andersen B, Brogaard T, Badre-Esfahani S, Jaafar N, Kirkegaard P. The SWIM study: Ethnic minority women's ideas and preferences for a tailored intervention to promote national cancer screening programmes-A qualitative interview study. Health Expect. 2021 Oct; 24(5): 1692-1700. doi: 10.1111/hex.13309    
  • Toft BS, Lindberg E, Hörberg U: Engaging in a research interview: lifeworld-based learning through dialogue. Reflective Practice. 2021; 22(5): 669-681. doi: 10.1080/14623943.2021.1953977  
  • Tscherning SC, Bekker HL, Vedelø TW, Finderup J & Rodkjær LØ. How to engage patient partners in health service research: a scoping review protocol. Research Involvement and Engagement. April 2021; 7: 20.
  • Trillingsgaard TL, Maimburg RD, Simonsen M. Group-based parent support during the transition to parenthood: Primary outcomes from a randomised controlled trial. Soc Sci Med. 2021 Oct; 287: 114340. doi: 10.1016/j.socscimed.2021.114340      
  • Vejlgaard C, Maribo T, Riisgaard Laursen J, Schmidt AM. Reliability and smallest detectable change of the Danish version of the Pain Self-Efficacy Questionnaire in patients with chronic low back pain. Scand J Pain. 2021 Jun 2; 21(4): 809-813. doi: 10.1515/sjpain-2021-0014. 
  • Wihl J, Rosell L, Frederiksen K, Kinhult S, Lindell G, Nilbert M. Contributions to Multidisciplinary Team Meetings in Cancer Care: Predictors of Complete Case Information and Comprehensive Case Discussions. J Multidiscip Healthc. 2021 Sep 4; 14: 2445-2452. doi: 10.2147/JMDH.S309162. eCollection 2021  
  • Winterbottom AE, Mooney A, Russon L, Hipkiss V, Williams R, Ziegler L, Bekker HL. Critical review of leaflets about conservative management used in uk renal services. J Ren Care. 2020 Dec; 46(4): 250-257. doi: 10.1111/jorc.12327    
  • Witteman HO, Maki KG, Vaisson G, Finderup J, Lewis KB, Dahl Steffensen K, Beaudoin C, Comeau S, Volk RJ. Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration. Med Decis Making. 2021 Oct; 41(7): 736-754. doi: 10.1177/0272989X211014163    
  • Ørtenblad L, Høtoft D, Krogh RH, Lynggaard V, Juel Christiansen J, Vinther Nielsen C, Hedeager Momsen AM. Women's perspectives on motivational factors for lifestyle changes after gestational diabetes and implications for diabetes prevention interventions. Endocrinol Diabetes Metab. 2021 Mar 19; 4(3): e00248. doi: 10.1002/edm2.248 

2020

  • Bradley E, Shelton A, Hodge T, Morris M, Bekker HL, Fletcher S, Barber S. Patient-reported experience and outcomes from orthodontic treatment. J Orthod. 2020 Jun; 47(2): 107-115. doi: 10.1177/1465312520904377    
  • Fasterholdt I, Kidholm K, Laursen T, Rodkjaer L. Cost analysis of a mind–body intervention compared to usual hospital-based outpatient visits in HIV-infected individuals: a feasibility study. Int J Technol Assess Health Care. 2020; 1(2): 11. doi: https://doi.org/10.21965/IJHBHTA.2020.001 
  • Finderup J, Lomborg K, Jensen JD, Stacey D. Choice of dialysis modality: patients' experiences and quality of decision after shared decision-making. BMC Nephrol. 2020 Aug; 21(1): 330. doi: 10.1186/s12882-020-01956-w
  • Hole B, Selman L & Winterbottom A. A Report from the Report from the Dialysis - getting the right balance conference. JKC. 2020 Mar 20: 5(2): 87-90. doi.org/10.12968/jokc.2020.5.2.87
  • Jensen AL, Lomborg K, Hjollund NH, Schougaard LMV, Olesen LB, Laurberg T, Hansen TK. DiabetesFlex ™ - the effect of PRO-based telehealth and user involvement in care management of patients with type 1 diabetes: Trial protocol for a non-inferiority randomised controlled study. Medical Research Archives 2020; 8(7). doi: 10.18103/mra.v8i7.2145
  • Jørgensen MJ, Pedersen CG, Martin HM, Lomborg K. Implementation of patient involvement methods in the clinical setting: A qualitative study exploring the health professional perspective. J Eval Clin Pract. 2020 Jun; 26(3): 765-776. doi: 10.1111/jep.13217
  • Manzano A, Eskytė I, Ford HL, Bekker HL, Potrata B, Chataway J, Schmierer K, Pepper G, Meads D, Webb EJD, Pavitt S. Impact of Communication on First Treatment Decisions in People with Relapsing-Remitting Multiple Sclerosis. Patient Educ Couns. 2020 May ; S0738-3991(20): 30280-9. doi: 10.1016/j.pec.2020.05.014  
  • Manzano A., Webb EJD, Meads D, Eskyte I, Ford HL, Chataway J, Pepper G, Marti J, Pavitt SH, Schmierer K, Bekker HL. Patient Perspective on Decisions to Switch Disease-Modifying Treatments in Relapsing-Remitting Multiple Sclerosis. Multiple Sclerosis and Related Disorders. Mult Scler Relat Disord. 2020 Nov; 46: 102507 doi: 10.1016/j.msard.2020.102507   
  • Mougaard-Frederiksen H, Seibæk L. Sundhedsprofessionelle perspektiver på patientinddragelse i det grøndlandske sundhedsvæsen. Grønlandsk Kultur og Samfundsforskning. Ilisimatusarfik. 2020
  • Nørskov KH, Overgaard D, Lomborg K, Kjeldsen L, Jarden M. Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors. Eur J Cancer Care (Engl). 2020 Nov; 29(6): e13289. doi: 10.1111/ecc.13289  
  • Ohlsson-Nevo E, Furberg M, Giørtz M, Johansson B, Kristensen I, Kunni K, Langegård U, Lysemose Poulsen R, Striem J, Tømmerås V, Wilhøft Kristensen A, Winther D, Sjövall K. Patients' perspective in the context of proton beam therapy: summary of a Nordic workshop. Acta Oncol. Oct. 2020; 59(10): 1139-1144. doi: 10.1080/0284186X.2020.1762927
  • Pompili C, Holch P, Rogers Z, Absolom K, Clayton B, Franks K, Bekker HL, Velikova G. Patients’ confidence in treatment decisions for early stage non-small cell lung cancer (NSCLC). Health and Quality of Life Outcomes. 2020; 18: 237. doi: 10.1186/s12955-020-01496-9    
  • Seibæk L. Patientinddragelse i klinisk hospitalspraksis. I: Aagaard T, Hounsgaard L: Menneske - sundhed, samfund og kultur. Sundhedsarbejde og sundhedsforskning i Grønland. 2020 (Peer-reviewed bidrag)
  • Seibæk L. Patientinvolvering i grønlandsk hospitalspraksis - et igangværende forskningsprojekt. Ilisimatusaat. 2020
  • Skovlund, PC, Ravn, S, Seibaek, L, Lomborg K, Nielsen BK et al. The development of PROmunication: a training-tool for clinicians using patient-reported outcomes to promote patient-centred communication in clinical cancer settings. J Patient Rep Outcomes. 2020; 4: 10. doi: 10.1186/s41687-020-0174-6
  • Sørensen CA, De Thurah A, Lisby M, Olesen C, Sørensen SB, Enemark U. Cost–consequence analysis of self-administration of medication during hospitalization: a pragmatic randomized controlled trial in a Danish hospital setting. Ther Adv Drug Saf. 2020 Aug 29; 11: 2042098620929921. doi: 10.1177/2042098620929921
  • Sørensen CA, Lisby M, Olesen C, Enemark U, Sørensen SB, De Thurah A. Self-administration of medication: a pragmatic randomized controlled trial of the impact on dispensing errors, perceptions, and satisfaction. Ther Adv Drug Saf. 2020 May 4; 11: 204209862090461. doi: 10.1177/2042098620904616
  • Sørensen CA, Olesen C, Lisby M, Enemark U, De Thurah A. Self-administration of medication during hospitalization - a randomized pilot study. Pilot and Feasibility Studies. 2020; 6: 116. doi: 10.1186/s40814-020-00665-3
  • Thaysen HV, Lomborg K, Seibæk L. Patienters behov og ønsker når højt specialiseret kirurgisk kræftbehandling ikke kan gennemføres som planlagt. Fokus på Kræft og Sygepleje. 2020
  • Vester LB, Dreyer P, Holm A, Lorentzen V. The experience of being a couple during an intensive care unit admission. Nurs Crit Care. 2020 Jul; 25(4): 238-244. doi: 10.1111/nicc.12421 
  • Webb EJD, Meads D, Eskyte I, Ford HL, Bekker HL, Chataway J, Pepper G, Marti J, Pavitt SH, Schmierer K, Manzano A. The impact of reproductive issues on preferences of women with relapsing multiple sclerosis for disease modifying treatments. The Patient. 2020 Oct; 13(5): 583-597. doi: 10.1007/s40271-020-00429-4
  • Winterbottom A, Mooney A, Russon L, Hipkiss V, Williams R, Ziegler L, Finderup J, Bekker HL. A Dialysis and Conservative Care Decision Aid: Living with Kidney Disease. The Yorkshire Dialysis and Conservative Care Decision Aid (YoDCA) study booklet. Kidney Research Yorkshire. 2020. https://kidneyresearchyorkshire.org.uk/home/yodca/
  • Winterbottom A, Mooney A, Russon L, Hipkiss V, Ziegler L, Williams R, Bekker HL. Critical Review of leaflets about conservative management used in UK renal units. J Ren Care. 2020 Dec; 46(4): 250-257. doi: 10.1111/jorc.12327
  • Winterbottom, AE, Mooney A, Russon L, Hipkiss V, Ziegler L, Williams R, Finderup J, Bekker HL. Kidney disease pathways, options and decisions: an environmental scan of international patient decision aids. Nephrol Dial Transplant. 2020 Dec 4; 35(12): 2072-2082. doi: 10.1093/ndt/gfaa102 

2019

  • Beck A, Thaysen HV, Søgaard CH, Blaakær J, Seibæk L. From waiting to preparing: A qualitative feasibility study of cancer patients' perspectives on prehabilitation. Eur J Pers Cent Healthc. 2019; 7(3): 443-453.
  • Dyrehave C, Wejse C , Maindal HT, Rodkjaer L. HIV, an uninvited visitor - A qualitative study of cultural target barriers to retention in care and adherence among HIV-infected African migrants. Eur J Pers Cent Healthc. 2019; 7(4): 623-629.
  • Finderup J, Jensen JD, Lomborg K. Evaluation of a shared decision-making intervention for dialysis choice at four Danish hospitals: A qualitative study of patient perspective. BMJ Open. 2019; 9(10): e029090.
  • Finderup J, Søndergaard H, Lomborg K. Patientinvolvering i forskningen: Patientinvolvering - Når to plus to bliver fem. Nyrenyt. 2019; 4: 12.
  • Rodkjaer L, Laursen T, Seeberg K. I am a whole person, not a diagnose - A mind-body intervention to improve the mental well-being of HIV-infected individuals in Denmark. European Journal for Person Centered Healthcare. 2019; 7(4): 614-622.
  • Seibæk L. Thaysen HV, Lomborg, K. Patientperspektiver på organisering af specialiserede kirurgiske kræftbehandlingsforløb – implikationer for sygeplejepraksis. Fag og Forskning. 2019
  • Soendergaard A, Laursen T, Chesney M, Sodemann M, Rodkjaer L. Differences in coping self-efficacy, social relations and depression among HIV-infected ethnic Danes and non-ethnic Danes in Denmark: a cross-sectional study. International Journal of HIV/AIDS Prevention, Education and Behavioural Science. 2019; 5(2): 156-163
  • Thaysen HV, Lomborg K, Seibaek L. Patient involvement in comprehensive, complex cancer surgery: Perspectives of patients, relatives and health professionals. Eur J Cancer Care 2019; 28(4): e13071. 
  • Therkildsen SB, Hansen LH, Jensen, LED, Finderup J. A Patient Decision Aid App for Patients With Chronic Kidney Disease: Questionnaire Study. JMIR Formative Research. 2019; 3(4): e13786
  • Zøylner IA, Lomborg K, Christiansen PM, Kirkegaard P. Surgical breast cancer patient pathway: Experiences of patients and relatives and their unmet needs. Health Expect. 2019; 22(2): 262-272
Pile of books
Revised 21.03.2024
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Web team at Health