Dialysis Choices booklet & decision coaching 2020

ResCenPI contact: jeanette.finderup@skejby.rm.dk 

https://kidneyresearchuk.org/kidney-health-information (2020)

ResCenPI contact: h.l.bekker@leeds.ac.uk

• Lambie M et al. Estimating Risks of Encapsulating Peritoneal Sclerosis Accounting for the Competing Risk of Death. Nephrol Dial Transplant. 2019; 34: 1585-1591. https://doi.org/10.1093/ndt/gfz034
• Brown E et al. Supportive Care Communication Strategies to Improve Cultural Competence in Shared Decision Making. Clin J Am Soc Nephrol. August, 2016. doi: 10.2215/CJN.13661215
• Durand M-A et al. Can we routinely measure patient involvement in treatment decision making in chronic kidney care? A service evaluation in 27 renal units in the UK. Clinical Kidney Journal. 2016; 1-8
• Winterbottom AE et al. Patient acceptability of the Yorkshire Dialysis Decision Aid (YoDDA) Booklet: a prospective non-randomised comparison study across 6 predialysis services. Perit Dial Int. 2016 Jul-Aug; 36 (4): 374-81
• Winterbottom AE et al. Patient acceptability of the Yorkshire Dialysis Decision Aid (YoDDA) Booklet: a prospective non-randomised comparison study across 6 predialysis services – supplementary materials. Perit Dial Int. 2016; 36 (4)
• Winterbottom AE, Bekker HL, Conner M, Mooney A. Choosing Dialysis Modality: decision making in a chronic disease context. Health Expectations. 2014; 17: 5: 710-723
• Winterbottom AE, Bekker HL, Conner M, Mooney A. Patient stories about their dialysis experience biases others’ choices regardless of doctor’s advice: an experimental study. Nephrol Dial Transplant. 2012; 27: 325-331
• Bekker HL, Winterbottom A, Mooney A. Patient information and decision making processes (editorial). British Journal of Renal Medicine. 2009; 14: 28-30
• Winterbottom A, Bekker HL, Conner M, Mooney A. Evaluating the quality of patient information provided by Renal Units across the UK. Nephrology, Dialysis and Transplantation. 2007; 22: 2291-2296     

https://www.kidneyresearchyorkshire.org.uk/home/yodca/ (Sept 2020)

• Winterbottom AE et al. Kidney Disease Pathways, Options and Decisions (KD-POD): An Environmental Scan of International Patient Decision Aids (PtDA). Nephrol Dial Transplant. 2020; 1-11. 10.1093/ndt/gfaa102  
• Winterbottom AE et al Critical review of leaflets about conservative management used in UK renal services. Journal of Renal Care. 8^th April 2020.  10.1111/jorc.12327
• Winterbottom AE, Bekker HL, Ziegler L. Hipkiss V, Williams R, Russon L, Mooney A. The Yorkshire Dialysis vs Conservative-management Decision Aid (YoDCA): study protocol. Journal of Kidney Care. 2018; 2: 179-185    

https://crimson.leeds.ac.uk/wp-content/uploads/sites/51/2019/12/UOL169_CRIMSON-A4-Brochure_WEB.pdf 

ResCenPI contact: h.l.bekker@leeds.ac.uk 

• Webb EJD et al. The impact of reproductive issues on preferences of women with relapsing multiple sclerosis for disease modifying treatments. The Patient. Oct. 2020 DOI: 10.1007/s40271-020-00429-4   
• Manzano A et al. Patient Perspective on Decisions to Switch Disease-Modifying Treatments in Relapsing-Remitting Multiple Sclerosis. Multiple Sclerosis and Related Disorders. 2020; November: 46 OI:https://doi.org/10.1016/j.msard.2020.102507
• Manzano A, et al. Impact of Communication on First Treatment Decisions in People with Relapsing-Remitting Multiple Sclerosis. Patient Education and Counselling. 11^th May 2020. oi.org/10.1016/j.pec.2020.05.014    
• Eskyte I, et al. Understanding treatment decisions from the perspective of People with Relapsing Remitting Multiple Sclerosis: A critical interpretive synthesis. Multiple Sclerosis and Related Disorders. 2019; 27: 370-377    

https://cancerfertilityandme.org.uk/  (July 2020)    

ResCenPI contact: h.l.bekker@leeds.ac.uk   

• Mahmoodi N, Bekker HL, King NV, Hughes J, Jones GL on behalf of the Cancer, Fertility and Me research team. Are publicly available internet resources enabling women to make informed fertility preservation decisions before starting cancer treatment: an environmental scan? BMC Medical Informatics and Decision Making. 2018; 18:104 
• Jones GL et al. Observational study of the development and evaluation of a fertility preservation patient decision aid for teenage and adult women diagnosed with cancer: The Cancer, Fertility and Me research protocol. BMJ open. 2017; 7     

Termination Methods for Early Pregnancy Decision Support Leaflet (2003)

ResCenPI contact: h.l.bekker@leeds.ac.uk

• Wong SSM, Thornton JG, Gbolade B, Bekker HL A randomised controlled trial of a decision aid leaflet to facilitate women’s choice between pregnancy termination methods. British Journal of Obstetrics and Gynaecology. 2006; 113: 688-695    
• Wong SM, Bekker HL, Thornton JG, Gbolade B. Choices about termination method: assessing the quality of patient information in England and Wales. British Journal of Obstetrics and Gynaecology. 2003; 110: 263-266      

Prenatal Diagnosis Testing Decisions After Down's Syndrome Screening.

ResCenPI contact: h.l.bekker@leeds.ac.uk

• Bekker HL, Thornton JG, Hewison J. Applying decision analysis to facilitate informed decision making about prenatal diagnosis for Down’s syndrome: a randomised controlled trial. Prenatal Diagnosis. 2004; 24: 265-275   
• Bekker HL, Hewison J, Thornton JG. Understanding why decision aids work: linking process and outcome. Patient Education and Counselling. 2003; 50: 323-329  
• Bekker HL. Genetic screening: facilitating informed choices. (p. 926-930). In (Eds) Cooper DN, Thomas N. Nature Encyclopaedia of the Human Genome. 2003. New York: Nature Publishing Group - Macmillan Publishers Ltd.